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PLUK eNews April
12-16, 2004
http://www.pluk.org/eNews/Apr_12_04.htm
Volume 2 Issue 40
Welcome to the weekly PLUK eNews!
(Download the printable pdf version at: http://www.pluk.org/eNews/Apr_12_04.pdf
)
We are proud to present news of interest for Montana families of children with disabilities and chronic illnesses, and for the professionals and educators who serve them; however, it does not constitute an endorsement.
"More money is put into prisons than into schools. That, in itself, is the description of a nation bent on suicide. I mean, what is more precious to us than our own children? We are going to build a lot more prisons if we do not deal with the schools and their inequalities." -Jonathan Kozol (author/educator)
Highlights: (click on title to go to story)
ADHD in the teenager: Services & Interventions, PLUK ITV Training, April 13
Topic: ADHD in the teenager: Services & Interventions
Speakers: panel from Kalispell, MT
Dr. Marlene Snyder
Diana & Tom Auerhammer, LCPC
Elsie Johnson, Registered Educational Therapist
When: Tuesday, April 13, 2004, 6:00-8:00pm MST
There will be an open house from 4:30 to 6:00pm at Byte Savvy in Kalispell.
Session Description: Attention Deficit Hyperactivity Disorder, or
ADHD, is a neurological disorder that affects up to 5% of school-aged children
and adolescents. Children with ADHD may exhibit developmentally inappropriate
attention skills, impulsivity, hyperactivity, and poor school performance. If
undiagnosed and untreated, ADHD can negatively impact a child's ability to
effectively learn at home and school, as well as to develop healthy
relationships with family, peers, and adults. This panel will cover issues
related to driving, sexuality, testing, counseling, interventions, organization,
study skills, and differing learning styles.
Current Sites:
Streaming Sites:
Miles City: Holy Rosary Health Center Community Room #1, 951-1357
How to participate:
All sessions are videotaped and available through the TRIC/PLUK Library and on a web archive. For information on current active sites, registrations, and all sessions, visit the web site: http://www.pluk.org/ITV.htm or call the PLUK office at 800-222-7585.
Future Session topics: May 11, 2004: "Fragile-X"
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National Resource Center on ADHD
The National Resource Center on AD/HD: A Program of CHADD has been established
with funding from the U.S. Centers for Disease Control and Prevention (CDC) to
be a national clearinghouse of information and resources concerning this
important public health concern. Attention-deficit/hyperactivity disorder
(AD/HD) is a neurobehavioral disorder that impairs the functioning of millions
of American children and adults each and every day.
This Website answers many of your questions about AD/HD, and directs you to
other reliable sources online. New material is regularly being added.
http://www.help4adhd.org
NRC Library
The National Resource Center on AD/HD Library is a collection of resources on
attention-deficit/hyperactivity disorder and related topics. The collection
includes books and articles for professionals, educators, parents, and
individuals with AD/HD. Some of the resources are available in summary form
only, while others are available in full text.
http://www.help4adhd.org/library.cfm
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Call for Submissions from College Students with
Disabilities
The Association on Higher Education and Disability (AHEAD) is soliciting
articles for an anthology about first-year college students with disabilities.
The purpose of the book is to educate prospective college students with
disabilities, parents of students with disabilities, university personnel, and
transition specialists in K-12 education, through the voices of current and
former college students. The book will focus on two major issues: the experience
of graduating from high school and going to college; and life during the first
year of college as a student with a disability. Fictional short stories, essays,
poetry, photographs and art about college experiences are welcome. The deadline
for submissions is June 1, 2004. http://www.ahead.org/publications/anthology.html
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Transitioning Successfully: Native American Students
with Disabilities (Newsletter)
This edition of the Montana Transition Newsflash, dedicated to transitioning for
Native American Youth, identifies some of the major issues facing educators,
students, and families. Available in PDF format (4 pages). http://www.msubillings.edu/transition/March%2004%20Newsflash.pdf
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High School Diplomas for Youth with Disabilities:
Options and Alternate Routes (Teleconference Call) April 27
1:00 2:00 PM Central Time (Teleconference Call) April 27, 2004
Public criticism during the past two decades about the lack of knowledge and
skills among students leaving schools with high school diplomas has led states
to implement graduation policies and requirements that call for raised academic
standards for all students, state and local district testing, development of
exit exams linked to a student¹s eligibility for a diploma, and a focus on
increasing student graduation rates. Within this context, there has been a new
emphasis on the inclusion of all students in an educational system with high
expectations and the same standards for all students. Thus, one of the major
challenges in implementing more rigorous high school graduation policies has
been to determine how best to include students with disabilities. This
teleconference will highlight findings from a national study on Graduation
Requirements and Diploma Options for Youth with Disabilities. A recent study of
alternate routes for obtaining standard diplomas in states with graduation exams
will also be presented. To join this call, dial 703-925-2403 a few minutes
before the call begins, and refer to the "NCSET Teleconference Call"
if asked by the operator. http://www.ncset.org/teleconferences/
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2004 Child Abuse Prevention Community Resource Packet
Source: National Clearinghouse on Child Abuse and Neglect - March 30, 2004
Each April, Child Abuse and Prevention Month activities raise awareness about
what each of us can do to prevent the abuse and neglect of our Nation's
children. The 2004 Child Abuse Prevention Community Resource Packet is one of
the key components of the Child Abuse Prevention Initiative, which is sponsored
by the Office of Child Abuse and Neglect; Children's Bureau; Administration on
Children, Youth and Families; Administration for Children and Families; U.S.
Department of Health and Human Services. The Children's Bureau works with State
and local agencies to develop programs that focus on preventing the abuse of
children in troubled families, protecting children from abuse, and finding
permanent placements for those who cannot safely return to their homes. The
Children's Bureau promotes the safety, permanency, and well-being of children
through leadership, funding support for necessary services, and partnerships
with States, Tribes and communities. The packet is available online at http://nccanch.acf.hhs.gov/topics/prevention/order/index.cfm
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Recent Changes in Benefit Programs Assist Individuals
with Disabilities in Building Assets
http://www.wid.org/publications/?page=equity&sub=200403&topic=fa
Eileen Sweeney, Center on Budget and Policy Priorities, provides a timely
article focusing on recent developments in Supplemental Security Income (SSI)
that affect assets and provides an update on rules in other federal programs.
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A-to-Z of Blindness and Vision Loss Now Online;
American Foundation for the Blind Expands Web Site
NEW YORK, April 5 /U.S. Newswire/ -- Whether you're hoping to find the
latest information on accessible cellphones for people who are blind or have low
vision, looking for resources to help teach a visually impaired student in your
classroom, working for a corporation researching ADA compliance, or are
experiencing vision loss and want to learn how to maintain your independence, http://www.AFB.org
has the answer.
The American Foundation for the Blind (AFB) relaunched its web site today adding
new information and resources for the 10 million Americans who are blind or have
low vision. All the site's content is either new or updated to reflect the
growing demand for current and reliable information for a population that is
expected to grow dramatically as the baby boomers age.
"AFB has been delivering information through our Web site for over a
decade," said AFB President and CEO Carl R. Augusto. "By expanding our
web presence, we've made AFB's vast expertise and resources available at the
touch of a button, anytime of day."
New features on the site include a glossary of eye conditions, "etiquette
tips" for interacting with a person who is blind, and a home page function
called "Where can I find?," allowing visitors to locate organizations
in their state that provide services-from dog guide training to newspaper
reading services to education services-for people who are blind or visually
impaired and their families.
AFB has also added an extensive searchable database of assistive technology
products used by people who are blind or visually impaired. Visitors can browse
by product, category, or manufacturer and find out everything from usage to
price to the size and weight of the product.
Read the complete article at: http://releases.usnewswire.com/GetRelease.asp?id=104-04052004
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Keep up the Pressure on CMS re Power Wheelchairs!
During CMS's March 31, 2004 "Open Door Forum on the Medicare Power
Mobility Benefit," an astonishing 657 people attempted to participate via
conference call. However, as the forum abruptly wrapped up that afternoon, not
one of those 657 callers had been given the opportunity to speak, practically
eliminating the consumer's voice from this "open" discussion.
Furthermore, CMS has continued to hold these forums in Baltimore, an
inconvenient location for any Washington-based advocate, but especially for
those advocates with disabilities. We need to let CMS know that the Medicare
power mobility benefit effects more than the manufacturers and that everyone
deserves a voice in this debate about independence! As we continue to fight for
better access to wheelchairs through the Medicare program we need you to take
action. Please see the message below.
HELP US GET WASHINGTON TO FIX MEDICARE REGULATIONS ON WHEELCHAIRS, SCOOTERS, AND
SIMILAR DEVICES!
In December, 2003, as part of a new initiative to fight fraud in the Medicare
wheelchair benefit, the Centers for Medicare and Medicaid Services (CMS) issued
a "Policy Clarification" that severely limited access to wheelchairs
and other mobility devices. After months of fighting by individuals like you and
organizations like the ITEM Coalition, the Policy Clarification was retracted in
March, 2004.
HOWEVER, THE FIGHT IS NOT FINISHED. Current Medicare regulations provide access
to a mobility device only if needed for use in the four walls of a beneficiary's
home and not if he or she needs it to fully participate in work, school, and the
community outside of the home. The regulations also only cover mobility devices
for those beneficiaries who are "bed or chair confined," and not for
those who can get out of bed but have limited mobility without a wheelchair,
scooter or similar device.
We, with your help, are working to maintain momentum on this issue to ensure
that Medicare's overly restrictive regulations are fixed. PLEASE VISIT THE ITEM
COALITION WEBSITE AT http://ga3.org/campaign/takeaction
TO TAKE ACTION ON THIS ISSUE. On this website, you can tell key policymakers to
fix the Medicare regulations so that Americans with Medicare can have access to
mobility devices they need to be healthy, independent and functional.
Thank you.
Henry Claypool
Captioned Telephone Relay Service Available in Montana
CapTel (Captioned Telephone) essentially provides live captioning of phone
conversations, allowing users to ensure they receive and understand the full
context of any call.
Thanks to CapTel, MTAP consumer Robert Ellesch is discovering the many pleasures
of interrupting during his telephone conversations. "CapTel has given me
the freedom to interrupt the person I am speaking with at anytime. For example,
if someone starts repeating information I already know, I can interject
immediately. With Two-Line VCO (the CapTel of the past), I had to wait until the
other person was finished speaking, " he explains.
For Robert and so many others, CapTel has revolutionized the relay calling
experiences. A specialized technology developed by Ultratec®, the world's
largest manufacturer of TTYs, CapTel permits individuals who are hard of hearing
to read a captioned version of their conversations on the text screen of their
phones and listen to the voice of the person they are calling at the same time.
Thanks to the very latest in voice-recognition technology, captions appear
nearly simultaneously with the spoken words. This is very similar in concept to
the closed captioning feature on televisions.
To place a Call, CapTel phone users directly dial the number of the person or
business they wish to reach (there is no need to dial a special number for relay
services). As they dial, the CapTel phone automatically connects to a captioning
service. During the conversation, a specially trained operator transcribes
everything the hearing party says into written text. This text then appears
nearly instantaneously on the CapTel phone's bright, easy-to-read display
window.
March 1, 2004 Montana Telecommunications Access Program began distribution of
CapTel phones to qualified individuals, free of charge. Completing and returning
the MTAP application in the mail or online at http://www.montanarelay.org
will begin the process of acquiring a new CapTel phone. For more information,
call 866-735-2968 v/tty.
For information on this service provided by Sprint, visit: http://www.sprintbiz.com/government/relay/index.html
For information on the captioned telephone, visit, http://www.captionedtelephone.com/
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Scam artists abusing relay system for deaf
Kevin rancher Roxy Gillespie got a call several months ago from a Montana
Telecommunications Relay Services operator who said she had a man on the line
who wanted to buy Gillespie's product.
Telecommunications Relay Services operators act as go-betweens for hard of
hearing or deaf people using Telecommunication Devices for the Deaf. The deaf
person types text into the device, which is plugged into a telephone. The
operator reads the text to the person on the other line.
Gillespie was suspicious. The product she had for sale on the Internet was
$10,000 worth of bull semen.
"'Product' isn't terminology used by someone with a ranch background when
talking about semen," Gillespie said.
Turns out the call originated in Nigeria. The caller was most likely a scam
artist who avoids paying long-distance charges by abusing the Telecommunications
Relay Services program.
It's one of the latest underhanded ways thieves are using new technology,
including computers.
Read the complete article at: http://www.greatfallstribune.com/news/stories/20040318/localnews/100257.html
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Resources for Child Abuse Prevention Month
Child abuse prevention continues to be a key priority for the U.S.
Department of Health and Human Services' Children's Bureau, Office on Child
Abuse and Neglect (OCAN) and its National Clearinghouse on Child Abuse and
Neglect Information. Building on the success of the Prevention Initiative
launched in April 2003, OCAN and its National Clearinghouse have continued to
partner with key national child abuse prevention organizations to identify
strategies to promote greater visibility of child abuse prevention activities
for Child Abuse Prevention Month in April, and throughout the year.
As part of this initiative, the National Clearinghouse website http://nccanch.acf.hhs.gov
recently launched an updated section on child abuse prevention featuring public
awareness information, emerging practices, and links to resources and
organizations for more information. New for 2004, the site also includes a
special section on "Developing and Sustaining Child Abuse Prevention
Programs in Tough Times." This online toolkit offers resources on
collaboration, marketing, Federal and private funding sources, evaluation, and
conducting cost analysis of child abuse prevention programs. Links to national,
State, and local examples of successful efforts in these areas are featured
throughout the toolkit.
Finally, copies of the "2004 Child Abuse Prevention Community Resource
Packet" (2nd Edition) in Spanish and English are being disseminated
nationally for Child Abuse Prevention Month. Limited print copies may be ordered
online from the Prevention Initiative website http://nccanch.acf.hhs.gov/topics/prevention
or by calling the National Clearinghouse on Child Abuse and Neglect Information
at (800) 394-3366. English and Spanish versions also can be downloaded from the
website.
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Life is Not a Dress Rehearsal
Download this complete article at: http://www.disabilityisnatural.com/articles/documents/LifeIsNotADressRehearsal_000.pdf
For many people with disabilities, life is not unlike the lives of actors
preparing for a play, but with one significant difference. For actors, opening
night signals the end of the readiness phase. But for people with disabilities,
"getting ready" for the real thing--life--continues indefinitely.
Learn what's wrong with the "readiness" paradigm and what we can do to
change it!
This is the latest in a series of articles on "Revolutionary Common
Sense" by Kathy Snow at http://www.disabilityisnatural.com/.
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Three Pediatric Studies Emphasize Important Factors in
Better Understanding AD/HD
Three studies published in the April issue of Pediatrics, the research
publication of the American Academy of Pediatrics, address important factors in
better understanding AD/HD.
Two of the reports discuss changes and developments in children who are part of
the National Institute of Mental Health (NIMH) Multimodal Treatment Study (MTA)
which was first published in December 1999. Multimodal treatment for children
and adolescents with AD/HD consists of parent and child education about
diagnosis and treatment, specific behavioral management techniques, stimulant
medication, and appropriate school programming and supports. Treatment should be
tailored to the unique needs of each child and family.
The third report discusses how early television exposure may contribute to
subsequent attention problems in children.
Read the complete article at: http://www.chadd.org/press.cfm?cat_id=10&subcat_id=29&press_year=2004&press_id=118
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An Interview with Dr. Paula Tallal - Neuroscience,
Phonology and Reading: The Oral to Written Language Continuum
Some of the world's finest scientists, scholars and teachers are
participating in one of the most important television programs in history. With
a team including a PBS Emmy winner and with some of Hollywood's brightest stars,
Children of the Code tells the story of the invention of the alphabet (the code)
and its effects upon our civilizations, our brains, our consciousness and how
our children learn to read (decode the code). Much more than a series on
literacy, Children of the Code blends exciting historical dramatizations with
leading edge science to provide an exciting, entertaining and educational
journey into the greatest story never told.
Paula Tallal, Ph.D. is Board of Governor's Chair of Neuroscience and Co-Director
of the Center for Molecular and Behavioral Neuroscience at Rutgers University
and Co-Founder and a Director of Scientific Learning Corp (SCIL). A
world-recognized authority on language-learning disabilities, she is active on
many scientific advisory boards and government committees for both developmental
language disorders and learning problems.
Read the interview online at: http://www.childrenofthecode.org/interviews/tallal.htm.
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Judge says mental illness has been made a crime
By ALLISON FARRELL, Lee State Bureau
HELENA - When sheriff's deputies in Lincoln County pick up a suspect who is
mentally ill, the arrest usually turns into a three-day commitment, said Lincoln
County Sheriff Daryl Anderson.
If deputies take the person to St. John's Lutheran Hospital in Libby, they have
to post a deputy there to guard the patient. If they take the person to Pathways
Treatment Center in Kalispell, they spend more time on the road.
"If we had a mental health facility in our town, it would take a big weight
off our shoulders," Anderson said Tuesday.
Counties don't have adequate resources to treat the mentally ill and they end up
inappropriately sent to jail, said Bill Kennedy, Yellowstone County
Commissioner.
Read the complete article at: http://www.montanaforum.com/rednews/2004/03/24/build/health/mentalcrime.php?nnn=3
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Disabled Alaska Students Can Waive Exams
Thu Apr 8, 8:17 AM ET Add U.S. National - AP to My Yahoo!, By DAN JOLING,
Associated Press Writer
ANCHORAGE, Alaska - Alaska high school seniors with disabilities will not need
to pass the state's new high school exit exam to graduate this spring.
More than 500 students will be affected immediately by an agreement reached
Wednesday in a class-action lawsuit that charged that the exam puts disabled
students at a disadvantage.
Education Commissioner Roger Sampson said the agreement signed Wednesday allows
disabled students in the class of 2004 to graduate if they have met other
requirements for a diploma. Meanwhile, negotiations will continue on how to
accommodate disabled students in future classes.
Read the complete article at: http://story.news.yahoo.com/news?tmpl=story&cid=519&ncid=519&e=3&u=/ap/20040408/ap_on_re_us/qualifying_exam_lawsuit_1
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Enhancing Young Children's Learning Through Objects and
the Arts
Learn a new twist on tried-and-true methods to enhance learning for hearing
impaired, special needs or typical preschoolers. This active-learning workshop
uses everyday objects to create a bridge between what children already know and
new experiences, using visual arts, creative movement, and children's
literature. This hands-on, multi-sensory technique is appropriate for a variety
of settings. The four-day workshop includes daily sessions in Washington's
famous Smithsonian museums and is offered through a partnership with the
Smithsonian Early Enrichment Center .
Contact: Deborah Krichbaum, deborah.krichbaum@gallaudet.edu
The Learning Through Objects and the Arts workshop runs from Sunday afternoon,
July 18 through Wednesday, July 21
http://clast.gallaudet.edu/summer/special/enhancing.html
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Family Connections Children's Activity Fair, April 17,
Great Falls
10am-3pm at the Trades & Industry Bldg, Montana Expo Park, Great
Falls
Family Connections' Childcare Resource and Referral Program promotes the
availability of childcare for all families based on accessibility, affordability
and quality in Cascade, Glacier, Pondera, Teton, Choteau and Toole counties.
Family Connections is one of 12 regional Childcare Resource and Referral
agencies in the State of Montana. These non-profit offices offer comprehensive
childcare solutions to workers and employers in the following four areas:
Telephone 800-696-4503 or visit http://www.famcon.org/
for information.
For a directory of all Montana Childcare resource and referral providers, visit:
http://www.montanachildcare.com/map.htm.
To find providers nationally, visit: http://www.childcareaware.org/
.
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Sleek New Devices Help Low-Vision Patients See
Washington/The New York Times, By KENNETH CHANG, Published: April 6, 2004
With a stylish exterior of metallic blue and gray, the device looks like a
personal digital assistant but slightly larger.
Julius Mendalis, 84, a lawyer for the company that makes Arizona Iced Tea, paid
$795 for this gadget, and he loves it, though he is not a man of technology,
rarely uses computers and does not surf the Web.
It is helping him read again.
The Quicklook, an amalgamation of a tiny digital video camera and a four-inch
liquid-crystal display screen, acts as an electronic magnifying glass, enlarging
the text of a newspaper or a legal brief to an inch high. At that size, Mr.
Mendalis, whose vision has deteriorated from macular degeneration, can see the
letters clearly.
Read the complete article at: http://www.nytimes.com/2004/04/06/health/06EYE.html?ex=1396584000&en=32bf591b5e6e379f&ei=5007&partner=USERLAND
Find more information on the Quicklook at http://www.quicklook.com/
View information on other portable magnifiers at: http://www.aroga.com/low_vision/portable_cctv.asp
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Statement of Senator Max Baucus at the Hearing on
Improving Access to Medicaid Home and Community Based Services
April 7, 2004 - Washington DC - Mr. Chairman, thank you for holding this
very important hearing to consider strategies to improve access to home-and
community-based services under Medicaid. Let me pause for a moment to reflect on
that term that we will undoubtedly hear over and over today. "Home and
Community Based Services." The term sounds clinical. Bureaucratic. The kind
of term that can become a buzzword in Washington, DC. But when you step back and
consider that without these "home and community based services", a
person may be forced to leave her home, her family, and her community simply to
receive care to keep her alive. Then you realize just how important these
services are. And that they affect real people with real needs and real
families.
I hope that this hearing will remind all of us - members of Congress, of the
Administration, state policymakers, and citizens all around our country - that
we simply must work harder to make home, family and community available to
people with severe disabilities.
Read the complete statement at: http://finance.senate.gov/hearings/statements/040704mb.pdf
View material from the April 7 hearing at: http://finance.senate.gov/sitepages/hearing040704.htm
YOU can still submit written testimony to the Finance Committee for 2 weeks,
please do so. The Senators and their staff were clearly affected by the strong
presence and interest in the topic. Send it to
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1998 Rascal Power Chair for Sale
Has been in storage for 4 years and needs batteries. Will sell for $300.
Telephone Jeannie Davis at 406/665-1184.
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Training/Workshops/Meetings/Conferences in Montana:: (click on trainings for more information)
http://www.pluk.org/calendar.htm
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Training/Workshops/Conferences outside Montana:: (click on trainings for more information)
http://www.pluk.org/calendar.htm#00
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Art Workshops April 21 & May 5 in Billings
Parents, Let's Unite for Kids (PLUK) is sponsoring two special Art Workshops on
April 21st and May 5th for young people at the Yellowstone Art Museum. The
workshop is being co-sponsored by PLUK and the Yellowstone Art Museum in an
effort to introduce the world of art to children and teens. It's not necessary
that participants have any previous experience, but those with experience are
invited to attend too. It is necessary that parents call PLUK's Office and
pre-register their child to attend, as space is limited and there are a fixed
number of slots for participants. The workshop is open for children from age 6
through the teen years. It should be great fun and an interesting and artistic
experience! The workshop begins at 3:30pm and lasts until 5. Participants should
wear casual clothing. To register or for more information, call PLUK's Office at
255-0540. It is necessary to be registered to attend the session.
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Birthday Time?
Does your child have a birthday coming up? Are you dreading the decorating, food
preparation and cleanup? If so, Contact Bill at Montana Candy Bar & Deli at
294-2327. Montana Candy Bar & Deli offers birthday parties at their store
located at 111South 24th Street West in the Rimrock Mini Mall. They will do the
decorating, provide lunch, ice cream and activities for the kids giving you an
opportunity to sit back, relax and enjoy the party for a change. Be sure to take
your camera for great photo of all the activities. AND PLUK will receive a
portion of the proceeds!
Get your Albertson Community Partners card!
PLUK has joined Albertsons' Community Partners Card Program. This program is
designed to help non-profit organizations raise funds needed for their programs.
A percentage of your grocery total will be donated to PLUK. All that is needed
is to show your Community Partners card each time you make a purchase at
Albertsons. It does not cost you anything. If you are interested in assisting
PLUK in raising funds this way, please contact Bernice at 255-0540 to get a
Community Partners card.
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Parent's, Let's Unite for Kids - PLUK
516 N 32nd St Billings MT 59101-6003
800-222-7585; 406-255-0540; 406-255-0523 (fax)
plukinfo@pluk.org http://www.pluk.org
Edited by: Roger Holt rholt@pluk.org
Proofed & condensed by: Elisabeth Mills scribe@pluk.org
Assisted by: Katie Bonnell bonnell32@msn.com
View an archive of all Weekly eNews at http://www.pluk.org/eNews.htm
Mission Statement: Parent's Let's Unite for Kids unites parents, professionals, families and friends of children with special needs to support one another, and share information for the benefit of their children.
Vision Statement: Given information and support, individuals with disabilities and their families will feel empowered to advocate for themselves and participate fully in educational and community opportunities.
Statement on accessibility: Today, we endeavor to be conscious of the need for making all electronic information accessible, as we are aware of physical accessibility issues in our community. For design guidelines visit http://ncam.wgbh.org/cdrom/guideline/.
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