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PLUK eNews December
21, 2004
http://www.pluk.org/eNews/Dec_21_04.htm
Volume 3 Issue 10
Welcome to PLUK's electronic
newsletter!
(Download the printable pdf version at: http://www.pluk.org/eNews/Dec_21_04.pdf
)
We are proud to present news of interest for Montana families of children with disabilities and special health care needs, and for the professionals and educators who serve them; however, it does not constitute an endorsement.
Tips: Taking Care of Yourself
Raising a special needs child can be overwhelming. If you are not careful,
special education can consume your life. Many parents drive themselves until
they are exhausted and burned out.
Pace yourself. Listen to tapes about time management. Use a schedule to gain
control of your life. Spend time with friends or family to re-charge your
batteries and regain a healthy perspective.
Here are some tips for taking care of yourself and your family.
Tips: Taking Care of Yourself
From http://www.fetaweb.com/01/tips.takecare.htm
50 ways to fix your life
From http://www.usnews.com/usnews/issue/041227/health/27opener.htm.
From small tinkers that can improve your life to major transformations that
might save it, experts weigh in on how to make a new you in 2005
Americans have long been captivated by the notion of self-improvement--none more
so than Benjamin Franklin. An accomplished printer, author, postmaster,
scientist, inventor, and diplomat who taught himself to speak five languages,
this Founding Father never stopped striving to change for the better. At the
tender age of 79, he "conceiv'd the bold and arduous project of arriving at
moral perfection," describing 13 virtues to aim for--temperance, silence,
order, resolution, frugality, industry, sincerity, justice, moderation,
cleanliness, tranquillity, chastity, and humility--and an intricate system for
charting his progress in each. "Speak not but what may benefit others or
yourself; avoid trifling conversation," he writes in his Autobiography.
"Lose no time; be always employ'd in something useful; cut off all
unnecessary actions."
Read more at http://www.usnews.com/usnews/issue/041227/health/27opener.htm.
ADVENTURES IN EDUCATION: 2005 SPECIALS and DISCOUNTS
Don't miss the great SPECIALS and DISCOUNTS we are offering for the
ADVENTURES IN EDUCATION: 2005 Conference on Inclusive Education. PEAK Parent
Center's January 27-29, 2005 conference, hosted in Colorado, offers dozens of
MOTIVATING SPEAKERS, tons of GREAT STRATEGIES, and lots of FUN! Don't miss it!
EARLY REGISTRATION DISCOUNTS: Register for the Conference by December 23, 2004
to take advantage of our early registration discounts! Save up to $55.00 per
person when registering early.
INDIVIDUAL & FAMILY MEMBER DISCOUNTS: If you are a family member or person
with a disability you will receive additional discounts on registration fees.
Save up to $115 per person in ADDITION to early registration discounts!
FREE GIFT CERTIFICATE! If you have attended our Conference on Inclusive
Education before and you recruit someone new to attend, you are eligible to
receive a free $20.00 gift certificate. You can use the certificate to buy books
and merchandise at the PEAK Parent Center sales table during the conference.
Visit http://www.peakparent.org today to
Register and view our brochure!
John H. Hager Assumes Duties as Assistant Secretary for
Special Education and Rehabilitative Services
December 6, 2004
John H. Hager, a former lieutenant governor of Virginia, has been sworn in
as assistant secretary for the U.S. Education Department's Office of Special
Education and Rehabilitative Services (OSERS). The Senate confirmed Hager for
the post before its Thanksgiving recess.
In his new position, Hager will lead the office that administers federal special
education programs for America's 6.8 million children and youth with
disabilities. His office also promotes employment opportunities for adults with
disabilities and sponsors research to improve the lives of individuals with
disabilities of all ages. Hager's service career has included numerous
leadership roles with a number of disability organizations.
"I'm looking forward to working with the secretary and my staff at OSERS on
matters crucial to education and people with disabilities," Hager said.
"With the recent updates to the Individuals with Disabilities Education Act
and the Assistive Technology Act, we have valuable new opportunities to make a
difference in the lives of the people we serve."
Read the complete release at: http://www.ed.gov/news/pressreleases/2004/12/12062004b.html.
CONTRACTED LITERARY AND NEMETH BRAILLE, January 17 -
May 7, 2005
PAMELA BOESPFLUG, INSTRUCTOR
Description: This is a Braille class for those that know all non-contracted
braille letters and numbers and have had exposure to some contracted braille.
All 189 contractions of the Literary Braille Code will be presented early in the
class and students will practice writing contractions correctly in words and
sentences and recognize them as they read.† The emphasis will be on increasing
fluency of reading and writing braille.† Students will learn to write
addition, subtraction, multiplication and division problems using The Nemeth
Code, the math braille code. Formatting Nemeth problems will be introduced and
practiced. Students will explore math texts, Nemeth instruction books and
sources for braille books.
For information, contact Pam Boespflug at the Montana School for the Deaf and
Blind, 406/771-6083.
MSU-BILLINGS HOSTS WINTER EDUCATION CAMP FOR STUDENTS
GRADES 2-6, DEC. 28-29
Contact: Adam Sundstrom, Experiential Learning Program Coordinator, 896-5890
The Montana State University-Billings College of Professional Studies and
Lifelong Learning will host a Winter Education Camp for students in grades 2-6,
on Tuesday and Wednesday, December 28-29, from 9:30 a.m. to 3:30 p.m., on the
MSU-Billings campus.
The camp is a fun learning experience that uses games, activities and crafts to
teach a variety of winter topics, such as Montana mammals and winter weather.
Students will spend the day in small, same-age groups, and will be involved in
hands-on activities based on science education and winter outdoor skills.
On Dec. 28, the group will learn about "Marvelous Montana Mammals" and
will spend part of the day working on projects and reading stories about
mammals, guided by the staff and facilities at the MSU-Billings Library.
On Dec. 29, students will get a hands-on lesson about "TRACKS," with
ZooMontana instructors who will be come to the camp to share their knowledge and
excitement about Montana's winter animals.
The first 15 people to register will get a family pass to ZooMontana.
Cost for the camp is $60. Space is limited, so register your young explorer
soon. For more information about the Winter Education Camp, contact Program
Coordinator Adam Sundstrom at 406/896-5890 or (800)708-0068.
IDEA 2004 SUMMARY
From: NATIONAL COMMITTEE OF PARENTS AND ADVOCATES ORGANIZED TO PROTECT
IDEA
This is a summary of some of the most critical changes affecting children
with disabilities and their families in IDEA 2004, concentrating on the IEP
process, due process and the discipline provisions. How these changes affect our
children will depend, at least in part, on how the U.S. Department of Education
interprets them through policies and regulations and how they are implemented at
the state, district and school level. Most of these changes will be effective as
of July 1, 2005.
A new provision in the Act authorizes the Secretary to issue only regulations
necessary to secure compliance with the statute. This provision may limit the
Secretary's authority to issue regulations that could be useful in clarifying
ambiguities. A new section of the Act also suggests that states minimize the
number of rules, regulations and policies to which the school districts are
subject.
This law, as amended by the 2004 changes, will not provide mandatory full
funding. Although the annual amounts now authorized (permitted) to be spent on
IDEA would achieve full funding in six years, that assumes these amounts will
actually be appropriated (spent), and explains why mandatory funding of IDEA is
so important. In fact, two days after Congress passed the IDEA Conference Report
with its "glide path to full funding" it appropriated significantly
less funding for special education than it had just promised.
IEP PROCESS
DUE PROCESS
DISCIPLINE
Documentary film focuses on transition from hospital to
community
This film is also available for free on http://www.olmsteadcommunity.org
in DVD and VHS formats. It is an excellent video.
Documentary film focuses on transition from hospital to community (USA) Inside
Outside: Building a Meaningful Life after the Hospital, a new documentary film
by ex-patient filmmakers Pat Deegan and Terry Strecker, shows that recovery is
possible, even for people who are seen as severely disabled. People with
significant personal histories of psychiatric hospitalization are interviewed
about their experience of developing meaningful lives for themselves in the
community. They discuss their fear of leaving hospital and talk about the
different therapeutic, self-help, practical (housing, employment,
transportation) and spiritual supports they used to rebuild their lives.
According to the filmmakers, Inside Outside was inspired in part by the U.S.
Supreme Court's 1999 Olmstead decision, which states that the unjustified
institutionalization of people with disabilities is a form of discrimination
under the Americans with Disabilities Act. Inside Outside was recently screened
in Toronto, first at the Rendezvous with Madness film festival on November 17,
and then at the Recovery in Action forum on November 25. The Recovery in Action
forum also included an information fair and presentations by consumers, family
members, and mental health and peer support organizations on recovery-focused
projects. The event was organized by the Ontario Recovers Campaign, which was
formed in June 2004 to train, educate and advocate for recovery-oriented
programs and a recovery-oriented mental health system.
For information about the Ontario Recovers Campaign, contact Brian McKinnon at
416-285-7996, ext. 227, or bmckinnon@iprimus.ca.
For more information about Inside Outside, including how to order, see http://www.patdeegan.com.
"COMMUNITY FOR ALL" TOOL KIT
From The Arc of the United States
This tool kit was developed at the request of volunteers, advocates,
self-advocates, and professionals concerned that the remarkable progress made
towards the inclusion of people with cognitive, intellectual and developmental
disabilities (our constituents) into the fabric and mainstream of community life
in America was at risk. In some places in the United States there are those who
would not only continue to deny people currently in public and private
institutions freedom and opportunity through continued institutionalization but
who also want to expand the role of institutions in the lives of our
constituents.
The organizations contributing to this tool kit find that unacceptable, given
all we know about how to effectively support all people, regardless of their
disability, in the community. To fight the disinformation so common among those
who favor continued segregation, this tool kit provides the philosophy, policy
and research rationale that supports community supports and services for all
people with disabilities, in the context of their families, their communities
and their country.
You are free to copy or modify any of the information in this tool kit for your
use. If it is photocopied or reproduced from a journal or magazine, you need to
get permission to copy it from the journal or magazine publisher.
The published articles, book chapters and monographs should be cited as such
with respect to the authors and to copyright laws.
NOTES: Some portions of this Tool Kit can either be found on the Web or will
link to external files; where possible, links to these external sites and
documents are included. Most files included or linked to are in Portable
Document Format (PDF) and will require the free Adobe Acrobat Reader Program
(available at http://www.adobe.com) to view
them.
A full copy of the Tool Kit can be downloaded or printed. It is a large document
and may take a considerable amount of time to download. You can order a complete
copy of the Tool Kit including a CD with all documents from http://thechp.syr.edu/toolkit/.
Which Programs Work to Prevent Teen Violence?
Preventing Violence and Related Health-Risking Social Behaviors in
Adolescents National Institutes of Health State-of-the-Science Conference
Statement Available free at http://consensus.nih.gov/ta/023/023youthviolenceHTMLstatement.htm.
"Scare tactics" aimed at preventing violent behavior among adolescents
do not work and may make the problem worse, according to a new research-based
consensus document put together by a panel at the National Institutes of Health
(NIH). The panel convened Oct. 13-15 to review scientific research on youth
violence prevention.
It concluded that "get tough" programs such as detention centers and
boot camps create environments where more experienced delinquent adolescents
teach the less experienced how to be delinquent. In addition, a research review
by the U.S. Centers for Disease Control and Prevention suggests that putting
juveniles in the adult judicial system is counterproductive, because it is more
likely to result in kids learning to be more violent than it is to deter them.
The draft statement concludes: "Ineffective programs may not harm the
participants directly (although some do) but they may have an important toxic
effect nonetheless; namely the 'opportunity cost' of funds misspent on an
unsuitable program that might have been spent on an effective one."
The experts agreed that two programs aimed at reducing arrests for violent
crimes or violence precursors are effective: Functional Family Therapy and
Multisystemic Therapy. Functional Family Therapy is a short-term family-based
prevention and intervention program to treat high-risk youth and their families.
The youth and families attend at least 12 one-hour sessions over three months.
Multisystemic Therapy provides community-based clinical treatment for violent
and chronic juvenile offenders who are at risk for out-of-home placement. The
average treatment is 60 hours of therapist-family contact over four months. Both
programs reduced re-arrest rates, violent crime arrests and out-of-home
placements for a period of approximately four years.
Read more at: http://www.youthtoday.org/youthtoday/research.html.
Request for Help from Families of Children with Genetic
Disorders
The Genetic Alliance is requesting the help of families of children with
genetic disorders. The following is their request:
As consumers, you often have concerns about what providers know (and don't know)
about genetics, but often don't have a chance to describe what you think
providers need to learn. Now you have an opportunity to be heard by an
organization that teaches health care providers about genetics, the National
Coalition for Health Professional Education in Genetics (NCHPEG).
The Genetic Alliance is partnering with NCHPEG in a survey. The purpose of this
survey is to ask families living with children with genetic conditions about
their perceptions of their health care provider knowledge of genetics. The
information from this survey will be used to develop genetics education for
specific types of health care providers.
http://www.nchpeg.org/SFGC_Survey/Survey.asp.
If your family member has more than one medical condition, you may respond to
the survey once for each condition. You are the experts we need your help!!!!
Thanks so much!
Sharon Terry, MA, President & CEO, Genetic Alliance, 4301 Connecticut
Avenue, NW Suite 404, Washington, DC 20008-2369, Voice: 202-966-5557 x213, Fax:
202-966-8553, Email: sterry@geneticalliance.org,
Web: http://www.geneticalliance.org
Free Special Education Advocacy Course for Parents
Partners in Education is a 3-hour online self-study course for parents of
children with disabilities. The course is designed to teach the skills you need
to advocate for your child. You will learn about:
To learn more about the Partners in Education course go to http://www.partnersinpolicymaking.com/education/index.html
Free Professional Development Workshops for Teachers
The U.S. Department of Education is offering online, on-demand professional
development training for elementary and secondary school teachers.
Teacher-to-Teacher e-Learning links educators to videos of workshops. The
workshops are taught by exemplary teachers and education experts who demonstrate
how you can translate scientifically based research into classroom practice and
how you can use data to inform your instruction.
These workshops cover various topics, including reading instruction, math, and
science, and may be taken for credit.
To learn more about the Teacher-to-Teacher e-Learning program go to http://www.ed.gov/teachers/how/tools/initiative/index.html.
Autism: Why Do Some Develop Then Regress?
From http://www.umich.edu/news/index.html?Releases/2004/Nov04/r111804b
ANN ARBOR, Mich -- Most children with autism show developmental differences
early in life, usually involving their ability to communicate. But new
University of Michigan research examines the 20 to 40 percent of youngsters who
appear to develop communication skills, then regress.
The largest known study of its kind offers a host of new details on autism with
regression, including a link between regression and a family history of
autoimmune thyroid disease, an association with gastrointestinal symptoms and
more findings offering a better picture of autism's causes.
While previous research used data collected from school age and older children,
the new study included mostly children in their pre-school years. The U-M Autism
& Communication Disorders Center used data collected from 13 sites across
the nation as part of a larger project within the Collaborative Program for
Excellence in Autism.
The studies are detailed in three upcoming medical journal papers by U-M
researchers Jennifer Richler and Rhiannon Luyster and University of Cincinnati
researcher Cindy Molloy. They looked at numerous factors contributing to Autism
Spectrum Disorder (ASD).
The researchers found:
The study, gathering information through collaboration with many of the
nation's top universities, brought together data from 1,592 children diagnosed
with ASD across the 13 sites during a five-year period. Researchers gave greater
analysis to 351 cases, to include 163 with regression and 188 with no
regression.
Autism is a complex developmental disability that typically appears during the
first three years of life. ASD impacts the normal development of the brain
processes related to social interaction and communication skills. Children and
adults with autism typically have difficulties with verbal and non-verbal
communication, social interaction, and leisure or play activities.
Center Director Catherine Lord, a nationally known pioneer in autism research,
played a key role in learning how to properly diagnose 2-year-olds a decade ago.
She is confident the University's research will make it routine to diagnose
autism for children 18 months old, and perhaps younger.
The number of children diagnosed with the disorder has increased tenfold during
the past decade. The center has been conducting a sweeping longitudinal study of
children with ASD that started when participants were age 2. Most of the
subjects now are in their teens.
More on the Autism & Communication Disorders Center: http://www.umaccweb.com/
The Apple MUG Store
PLUK is a registered Apple User Group and anyone reading this may purchase
from the user group store. The MUG store has free freight to members, RAM
rebates, aggressive pricing on new (and reconditioned) Macs and the largest
selection of pre-owned Macs on the planet.
Visit this exclusive user group site at http://www.applemugstore.com
12/1/2004-3/30/2005 - User ID: mug - Password: store
If you purchase items, just state you are a member of PLUK, Parents, Let's Unite
for Kids.
Upcoming PLUK trainings and activities planned for
Winter/Spring 2005
PLUK associate boards around the state are sponsoring a number of trainings
and activities this coming year. Mark your calendar if you are interested in
participating.
Go to http://www.pluk.org/training
for more detailed information and registration.
January 2005
Title: Staying Cool When Our Buttons are Pushed: An Introduction
Date: Tuesday, January 11, 6:00 - 8:00 PM
Where: Interactive video conference airing statewide from Missoula
Presenter: Doug Cochran-Roberts
Title: ADHD: Where We Stand Today
Date: January 19, 9:00 AM - 4:00 PM
Where: Bozeman Chamber of Commerce
Presenter: Stephanie Luehr
Title: Staying Cool When Our Buttons are Pushed
Date: January 24, 9:00 AM - 4:00 PM
Where: Mansfield Center, Billings
Presenter: Doug Cochran-Roberts
February 2005
Title: Fetal Alcohol Syndrome
Date: Tuesday, February 8, 6:00 - 8:00 PM
Where: Interactive video conference airing statewide from Fort Belknap
Presenters: Jill Plumage, Fort Belknap Hospital
Title: Special Education in Montana (legal aspects and case studies)
Date: February 9, 9:00 AM - 4:00 PM
Where: Montana School for the Deaf and Blind conference room, Great Falls
Presenter: Kathy Manley Coburn
Title: Financial Planning and Resources for Families
Date: February 24, 9:00 AM - 4:00 PM
Where: Ruby's Conference Center, Missoula
Presenters: Nancy Gibson & Karen Grove
March 2005
Title: Bullying: an Introduction to What we can do
Date: Tuesday, March 8, 6:00 - 8:00 PM
Where: Interactive video conference airing statewide from Kalispell
Presenters: Dr. Marlene Snyder and panel
Title: ADHD: Where We Stand Today
Date: March 9, 9:00 AM - 4:00 PM
Where: Kalispell
Presenter: Stephanie Luehr
Title: Staying Cool When Our Buttons are Pushed: Part 2
Date: March 21, 9:00 AM - 4:00 PM
Where: Kalispell, The SUMMIT
Presenter: Doug Cochran-Roberts
April 2005
Title: TBA
Date: Tuesday, April 12, 6:00 - 8:00 PM
Where: Interactive video conference airing statewide
Presenters: TBA
Title: Bullying: What we know, What we can do
Date: April 15, 9:00 AM - 4:00 PM
Where: Miles City
Presenter: Dr. Marlene Snyder
May 2005
Title: TBA
Date: Tuesday, May 10, 6:00 - 8:00 PM
Where: Interactive video conference airing statewide
Presenters: TBA
Title: Fetal Alcohol Syndrome
Date: Tuesday, May 17, 9:00 AM - 4:00 PM
Where: Great Falls
Presenters: Jill Plumage, Fort Belknap Hospital
Other Community Activities
Parent's, Let's Unite for Kids - PLUK
516 N 32nd St
Billings MT 59101-6003
800-222-7585; 406-255-0540; 406-255-0523 (fax)
plukinfo@pluk.org
http://www.pluk.org
Edited by: Roger Holt rholt@pluk.org
Proofed & condensed by: Elisabeth Mills scribe@pluk.org
Mission Statement: Parent's Let's Unite for Kids unites parents, professionals, families and friends of children with special needs to support one another, and share information for the benefit of their children.
Vision Statement: Given information and support, individuals with disabilities and their families will feel empowered to advocate for themselves and participate fully in educational and community opportunities.
Statement on accessibility: Today, we endeavor to be conscious of the need for making all electronic information accessible, as we are aware of physical accessibility issues in our community. For design guidelines visit http://ncam.wgbh.org/cdrom/guideline/
Privacy Policy: We do not sell, rent, or lend the e-mail addresses of our subscribers.