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PLUK eNews October 22, 2004
http://www.pluk.org/eNews/Oct_22_04.htm 
Volume 3 Issue 6

Welcome to PLUK's electronic newsletter! 
(Download the printable pdf version at: http://www.pluk.org/eNews/Oct_22_04.pdf )

We are proud to present news of interest for Montana families of children with disabilities and special health care needs, and for the professionals and educators who serve them; however, it does not constitute an endorsement.

"So many of our dreams seem impossible, then improbable, then inevitable." -- Christopher Reeve

Highlights:


Christmas Ornament Art Workshops November 2, 9, & 16, Billings
Info as follows:

For information contact Bernice at the PLUK office, 406/255-0540


Montana Council on Disability Assists with Voting
The general election is two weeks away! Through the Help America Vote Act efforts the Council continues to ride match persons who are in need of a ride to a qualified ride provider in their home community. If you are in need of a ride or would like to provide a ride, please contact Council offices at 406/443-4332 or toll-free 1/866-443-4332. If you are experiencing any barrier or accessibility issues in your polling place contact the Montana Advocacy Program at 406/449-2344 or toll-free 1/800-245-4743.


Local nonprofit to deliver 75 wheelchairs to disabled children in Peru
By JOHN STROMNES of the Missoulian
When Eleanore Kittelson-Aldred died in July 2001, her mom and dad wanted to do something for the millions of disabled kids like her around the world. Tamara Kittelson-Aldred and her husband, Rick Aldred, started Eleanore's Project, which provides wheelchairs to some of the world's disabled children.
Worldwide, 6.7 million children are so severely disabled they need wheelchairs to get around. In November, 75 will get them thanks to Eleanore's Project, a nonprofit foundation started by the parents of a disabled Missoula girl who died just before her 12th birthday in July 2001.
The wheelchairs will be delivered in November to a school for impoverished children with disabilities in Lima, Peru by a team of 35 folks from Bozeman, Helena, Missoula and the Flathead Valley.
Some of the team members are proficient in wheelchair design, manufacture, setup and maintenance; some speak Spanish; some are professional occupational or physical therapists who can custom-fit each chair to its occupant; and some are just local folks who want to help.
To read the complete article, visit: http://www.missoulian.com/articles/2004/10/13/news/local/znews04.txt 
How you can help
Eleanore's Project is in the process of applying for nonprofit status, but has not yet received its tax-deductible donation number. Those who wish to support the project may make tax-deductible donations through ROC Wheels, 7275 Sypes Canyon Road, Bozeman MT 59715; mention Eleanor's Project. Those not concerned with tax-deduction benefits may contact Tamara Kittelson-Aldred directly at 406/549-9521 or by e-mail at tamaralka@qwest.net.  To suggest a gift or to make a donation to the team visiting La Alegria en el Senor School in Lima, Peru in November, e-mail rickaldred@yahoo.com.  Gifts must be small enough to be carried in personal luggage.


New Support Groups in Helena
Kelly Newman of Helena is sponsoring two new support groups in her home.
The first meets every Tuesday at 10:30AM. It is a group just for Mom's of high-needs kids.
The second is an Autism Awareness group which meets every Saturday at 3:00 PM. It is for individuals, couples and kids.
For more information contact Kelly at 406/449-2371.


Yellowstone ARC Halloween Dance, October 31, Billings
On Sunday, October 31, the Yellowstone ARC is sponsoring a Halloween dance from 1:30-4:30 PM at the Billings Hotel and Convention Center, 1223 Mullowney Ln.
For information, contact Bev Owens at 652-5510 or Leona at 656-9549.


Survey on Autism for Montana Parents & Professionals
The Montana Office of Public Instruction is distributing a survey for parents and educational professionals to determine your interest in receiving training in topics related to Autism and Asperger's Syndrome. This survey is located at http://data.opi.state.mt.us/scripts/metrics.cfg/websurveys.exe/ws?_133=16  and will be available until November 15. We encourage you to respond to the survey and share it with others who may be interested.
Results of the survey will be used to help set priorities for the type and location of future trainings on Autism. Once the survey results have been reviewed we will provide notice of any scheduled trainings.
We thank you for your time and consideration.
Bob Runkel, Administrator, Division of Special Education, Montana Office of Public Instruction


Psychiatrist: Some kids need meds to battle depression
By DIANE COCHRAN, Billings Gazette Staff
While studies have linked some antidepressant drugs to suicide in youths, at least one Billings psychiatrist says he believes it would be unethical to not prescribe them in some cases.
"We do not have adequate data on treatment of children, and we desperately need improved research," said John Blodgett, a child psychiatrist at Deaconess Billings Clinic Behavioral Health Center. But "do you let a child whose life is disrupted and who is suffering wait until better evidence comes along? I don't make them wait."
"I feel compelled to do something," Blodgett said. "I feel ethically there is enough scientific basis, enough promise, in these things that I can use them. It would be unethical to withhold treatment when people are severely depressed."
Children suffering from depression can benefit from antidepressants, but the controversial medications do not work for everyone and should not be prescribed without careful attention from a doctor, he said.
Read the complete article at: http://www.billingsgazette.com/index.php?id=1&display=rednews/2004/10/07/build/local/35-kids-depression.inc 


People who have uncontrolled seizures on the left side of their brains are more likely to have learning disabilities
Posted By: News-Medical in Medical Study News, Published: Tuesday, 12-Oct-2004
A recent study published in Epilepsia, the official journal of the International League Against Epilepsy (ILAE), indicates that people who have uncontrolled seizures on the left side of their brains are more likely to have learning disabilities, in comparison to people who have seizures on the right side of their brains.
Epilepsy, a neurological disorder associated with recurrent seizures, affects 0.5% to 1% of the population. In the U.S., about 2.5 million people have this disorder and about 9% of Americans will have at least one seizure during their lives.
In the study conducted at the LSU Epilepsy Center of Excellence, adult patients of normal intelligence with either left temporal lobe epilepsy (TLE) or right TLE were evaluated with reading comprehension, written language, and calculation tests. The Center researchers found that 75% of patients with left TLE had one or more learning disabilities. This was found in only 10% of those with right TLE. Additionally, those with left TLE reported higher rates of literacy and/or career development problems, such as a history of special education, repeating grades, or disrupted educational progress.
Read the complete article at: http://www.news-medical.net/?id=5529 


Campaign 2004: the Big Issues
The New York Times has been running a series of editorials on the "big issues" of the presidential election. Visit http://www.nytimes.com/ref/opinion/campaign-issues.html?pagewanted=all  for an archive of issues discussed.


Rural Schools in Need of Guidance, GAO Says
October 6, 2004, By Michelle R. Davis
The Department of Education should do more to assist small, rural school districts as they struggle to meet the requirements of the No Child Left Behind Act, a federal report released last week says.
The Government Accountability Office found that although the Education Department has taken some steps to address issues faced by rural schools, much more needs to be done on issues such as helping them with teacher training.
Read the complete article at: http://www.edweek.org/ew/ewstory.cfm?slug=06rural.h24 


New No Child Left Behind e-Learning Tool Offers Teachers Free, On-Demand Professional Development
October 7, 2004 - In its continuing effort to support classroom teachers, the U.S. Department of Education today unveiled a new No Child Left Behind e-Learning tool that offers teachers on-demand professional development training to meet a variety of educational needs and improve student achievement.
"The e-Learning workshops are a response to teachers who told us they needed access to in-depth, quality learning options that fit their busy schedules so they can earn and maintain their teaching credentials," said U.S. Secretary of Education Rod Paige. "The courses-which are offered free of charge and may be taken for credit-will be especially helpful to rural and other high-need areas as they seek to place highly qualified teachers in every classroom over the next two years, per the No Child Left Behind law."
Read more at: http://www.ed.gov/news/pressreleases/2004/10/10072004.html


IDEA Conference Committee Appointed
On October 8, 2004 the U.S. House of Representatives appointed a 14 member conference committee to negotiate the IDEA reauthorization bill differences with the Senate conferees. The House conferees included a mixture of representatives from the Education and Workforce Committee, Judiciary Committee and Energy and Commerce Committee. It is expected that those from Judiciary will focus on procedural safeguards and those from Energy and Commerce will focus on Medicaid issues contained in the bill.
With the appointment of conferees both bodies have signaled a desire to complete the negotiations during this session of Congress, so they don't have to start the reauthorization process anew in 2005. The U.S. House and Senate have adjourned until November 15, 2004, at which time a "lame duck" session will convene to address a variety of unfinished business. A "lame duck" session is held after a national election, but before terms of newly elected Representatives and Senators begin.
The House Conferees are listed below.
From the Education and Workforce Committee:
1. Rep. John Boehner (R-OH)
2. Rep. Mike Castle (R-DE)
3. Rep Vernon Ehlers (R-MI)
4. Rep. Ric Keller (R-FL)
5. Rep. Joe Wilson (R-SC)
6. Rep. George Miller (D-CA)
7. Rep. Lynn Woosey (D-CA)
8. Rep. Major Owens (D-NY)

From the Judiciary Committee:
9. Rep. F. James Sensenbrenner, Jr. (R-WI)
10. Rep. Lamar Smith (R-TX)
11. Rep John Conyers (D-MI)

From the Energy and Commerce Committee:
12. Rep. Joe Burton (R-TX)
13. Rep. Michael Bilirakis (R-FL)
14. Rep. John Dingell (D-MI)

During the last week of September, the Senate appointed all members of the Health, Education, Labor and Pensions Committee to the joint House-Senate Conference Committee. These members are as follows.
1. Sen. Judd Gregg (R-NH)
2. Sen. Bill Frist (R-TN)
3. Sen. Michael Enzi (R-WY)
4. Sen. Lamar Alexander (R-TN)
5. Sen. Christopher Bond (R-MO)
6. Sen. Mike Dewine (R-OH)
7. Sen. Pat Roberts (R-KS)
8. Sen. Jeff Sessions (R-AL)
9. Sen. John Ensign (R-NV)
10. Sen. Lindsey O. Graham (R-SC)
11. Sen. John W. Warner (R-VA)
12. Sen. Ted Kennedy (D-MA)
13. Sen. Christopher J. Dodd (D-CT)
14. Sen. Tom Harkin (D-IA)
15. Sen. Barbara A. Mikulski (D-MD)
16. Sen. Jeff Bingaman (D-NM)
17. Sen. Patty Murray (D-WA)
18. Sen. Jack Reed (D-RI)
19. Sen. John R. Edwards (D-NC)
20. Sen. Hillary Rodham Clinton (D-NY)
21. Sen. James M. Jeffords (I-VT)


Announcing Virtual Pencil Algebra
http://www.HenterMath.com 
Henter Math is pleased to announce the release of Virtual Pencil Algebra, computer software for interactive access to algebra for students who are Pencil Impaired. VPAlgebra provides solutions to the basic issues that a pencil impaired student encounters when dealing with simple Algebraic equations. It is an answer to the serious need for educational software to help students with disabilities who cannot use pencil and paper and therefore require an alternative environment for manipulation of numbers.
Using VPAlgebra a student can read, create, or manipulate equations involving a variety of elements and expressions, such as quantities, radicals, exponents, subscripts, matrices, fractions, and Greek symbols. VPAlgebra can be used by the student just like a pencil working through the problem step by step creating new equations. Teachers can use VPAlgebra to create an assignment or test, password protect it, and then send it to the student via email, save it to a diskette, or print out the answers. The password prevents students from changing the assignment. The same assignment can be printed-out for able-bodied students in the class, saving the teacher a lot of time.
Future versions of this product will handle higher levels of math, such as advanced algebra, trigonometry, calculus, and graphs. There will also be support for nemeth Braille output on embossers and refreshable Braille displays, alternative input devices for motor impaired students, and enhanced visual/audio displays for learning disabled students. For this first version a blind student will need the Jaws screen reader to work with VPAlgebra. We plan to configure other screen readers and screen magnifiers to work with this product in the future.
You can read more about VPAlgebra at http://www.HenterMath.com, and download a version for a free trial. The price is $299 plus shipping and handling. For less-advanced math check out our VP Arithmetic.


New Webpage for Parents - the OPI Parents Page
Linda McCulloch, Superintendent of Public Instruction
http://www.opi.state.mt.us/parents/ 
Parents are their children's first and most important teacher. For Montana's children to be successful students, a strong school and family partnership is essential.
The OPI Parents Page was created to help parents more easily find information about K-12 public education in Montana.
The evidence is clear, family involvement in schools matters. And the OPI Parents webpage helps communicate with parents about public education in Montana.
The types of information available to parents on the OPI website are:

The purpose of this website is to be responsive to the issues that are important to parents and their students. If you don't find what you need, please let me know.
*** Linda, OPISupt@state.mt.us 


New EEOC Fact Sheet Addresses Employment Rights of People with Intellectual Disabilities
Dispelling Myths and Fears Can Promote Employment Opportunities
WASHINGTON - In observance of National Disability Employment Awareness Month, the U.S. Equal Employment Opportunity Commission (EEOC) today released a fact sheet on the application of the Americans with Disabilities Act (ADA) to persons with intellectual disabilities in the workplace. The new publication is available at www.eeoc.gov.
The term "intellectual disability" describes the condition once commonly referred to as "mental retardation." Approximately one percent of the United States' population, an estimated 2.5 million people, have an intellectual disability. Estimates indicate that only 31 percent of individuals with intellectual disabilities are employed, although many more want to work.
"More often than not, individuals with intellectual disabilities face barriers in the workplace posed not by mental impairments but by other people's attitudes," said Commission Chair Cari M. Dominguez. "With this fact sheet, the EEOC aims to break down myths, fears and misperceptions that stand in the way of employment opportunities and sometimes even lead to harassment on the job. People with intellectual disabilities want to work and have a lot to contribute. Employers who are not tapping into this community are missing out."
Read the complete press release at: http://www.eeoc.gov/press/10-20-04.html 
View the fact sheet at: http://www.eeoc.gov/facts/intellectual_disabilities.html 


Dictionary of Educational Euphemisms
In this delightful article, Education World columnist Linda Starr, shares 20 excerpts from her "Dictionary of Education Euphemisms." Here's a sample to whet your appetite: "'Sarah exhibits exceptional verbal skills and an obvious propensity for social interaction.' (She never stops talking.)" Okay, one more: "'Jonathan accomplishes tasks when his interest is frequently stimulated.' (He has the attention span of a gnat.)" Follow the link below and read them all: http://www.education-world.com/a_issues/issues225.shtml 


"Get Tough" Youth Programs are Ineffective, Panel Says
Boot camps and other get-tough programs for adolescents do not prevent criminal behavior, as intended, and may make the problem even worse, a new study has found. Further, laws transferring juveniles into the adult court system lead these teenagers to commit more violence, the study said. More promising, reports Laura Meckler, are programs that offer intensive counseling for families and young people at risk.
http://www.boston.com/news/nation/washington/articles/2004/10/16/get_tough_programs_for_youths_criticized/ 


What Are Schools Legal Obligations Regarding Student Sexual Orientation? This New Guide Provides Questions and Answers.
Alexandria, Va. -- Oct 12 -- A consortium of national organizations, under the leadership of the National School Boards Association (NSBA), has issued a resource document to help school leaders address legal issues surrounding students' sexual orientation and gender identity.
Aimed at school policy makers and administrators, "Dealing with Legal Matters Surrounding Students' Sexual Orientation and Gender Identity" provides practical guidance on schools' legal rights and responsibilities with respect to students, school programs, and curriculum. It is intended to answer questions about students' civil rights which regularly arise in public schools.
Read more at: http://www.nsba.org/site/doc_micro.asp?TRACKID=&VID=38&CID=90&DID=34611 


The Economic Boost of Early Childhood Education
Investment in early childhood development pays off -- literally. A new Economic Policy Institute report shows how education programs for 3 and 4 year old children ultimately provide many financial benefits to local governments and taxpayers, including higher earnings and reduced crime and poverty. In "Exceptional Returns: Economic, Fiscal, and Social Benefits of Investment in Early Childhood Development," author and EPI research associate Robert Lynch finds high-quality early childhood development (ECD) programs contribute directly to higher employment and earnings, better health, less crime and poverty, solvency of Social Security, greater government revenues, and higher levels of verbal, math and intellectual achievement for participating students. The report calculates future savings and finds, for example, good early childhood education programs produce at least $3 in benefits for every dollar of investment.
http://www.epinet.org/content.cfm/books_exceptional_returns#exec 


Massive Shortfall of Early Care & Early Education for Working Families
A comprehensive new study reveals an enormous gap between the early care and education needs. The report found that "early care and education programs . . . are unevenly funded and administered, and vary in quality and accessibility." Quality child care and early education are widely available in many industrial countries, but a system "to allow parents to keep working and better prepare children for school and life is not yet available to parents around the United States," according to the report. It paints a dismal picture of quality standards in American child care and early education. Only 15 percent of center-based child care programs and 10 percent of home-based programs are rated as good or better, based on observations by a study team. The report calls on federal and state policymakers to work toward a universal, voluntary early care and education system that will provide all families with access to a dependable, safe, and nurturing system of care for preschool-aged children. It recommends federal funding to help states expand their early care programs without sacrificing their efforts to raise quality standards, and calls for more Head Start funding to allow more low-income children to become eligible.
http://www.iwpr.org/pdf/PressReleaseEarlyCare10-21-04.pdf 


New Wheelchair Video Camera Mount Delivers Creative Accessibility
Become A Rolling Video Professional! VGO, gives a wheelchair user full control over their video camera. This new wheelchair video system helps broadcasters, educators, AV and media departments meet ADA and Section 508 compliance* in a new creative way. Physically disabled, wheelchair dependent videographers can now adapt their wheelchairs to mount video cameras, monitors and more. The VGO wheelchair system brings creative accessibility to people with disabilities for shooting broadcast, wedding, and training videos as well as other multimedia productions. Get the creative juices going and create your own productions for business or pleasure.
The broadcast video wheelchair system comes equipped with a steel swing out arm and a camera tripod head mounted on it for safe and steady camera movement. The arm can easily swing out of the way when the user needs to enter or exit their wheelchair. The entire system can be removed simply from the wheelchair by releasing the two locking knobs.
More information at: http://www.lairdtelemedia.com/products/lairdcam.html#LTMM1 


Health Care Information through Medical Homes
The American Academy of Pediatrics recently published curricula around the concept of a Medical Home. A medical home is not a building, house, or hospital, but rather an approach to providing health care services in a high-quality and cost-effective manner. Children and their families who have a medical home receive the care that they need from a pediatrician or physician whom they know and trust.
The National Center of Medical Home Initiatives for Children with Special Needs, sponsored by the American Academy of Pediatrics, is working to make sure that children with special needs have a medical home where health care services are accessible, family-centered, continuous, comprehensive, coordinated, compassionate, and culturally-competent. To download the Every Child Deserves A Medical Home curriculum go to the National Center Web site at: http://www.medicalhomeinfo.org/training/materials.html


Center for the Improvement of Child Caring (CICC) Launching National Partnership Campaign to Find and Help Young Children with Special Needs
CICC has developed and put on the Internet, the CICC Discovery Tool and Referral System. Consisting of a series of age-specific questions, it helps parents and others quickly identify a variety of learning, communication, motor skill and behavioral problems that may not have been recognized or simply overlooked. It also connects them immediately to important community services and agencies throughout the United States that can help.
The CICC Discovery Tool and Referral System has been used successfully throughout the nation by thousands of parents of young children, caregivers, agencies, and professionals in the early childhood education field. It is unique in that it provides - simultaneously - the following three types of services on-line:

The results of the Tool are in the form of a Developmental Profile that can be printed out and shared with others.
Visit the CICC web site at http://www.ciccparenting.org/ 
Go to the Discovery Tool at http://www.ciccdiscoverytool.org/Welcome.aspx 


Made in Montana: Custom Weighted Blankets By Eileen
I specialize in making custom weighted blankets for children, teens and adults who are comforted and benefit from them. I make larger blankets for sleep, in addition to wrap and lap blankets which are smaller and used mainly as a calming tool.
This would include those people affected by Autism, ADHD, ADD, PDD, have sensory issues. etc. I have several customers who have purchased sleep blankets who just have trouble sleeping and have found the blankets helpful.
It started with my autistic son not being able to sleep without waking every few hours. We tried all types of "therapies" to help him sleep, short of using drugs. Since he started using a weighted blanket for sleep, his night time sleep goes most nights without waking during the night. It was not only his therapy, but was also ours. He has a lap blanket and it only calms him sometimes. The sleep blanket works all the time and you may also find this to be true. One type of blanket may work and another will not.
So I now make blankets for anyone that asks, it is almost a full time job.
Contact Eileen at 406/642-3253 or mtcustomblankets@aol.com
Visit her web site at: http://members.aol.com/mtcustomblankets/weightedblanket.html 


McKeon Bill to Expand Access to Technology for Individuals with Disabilities Approved by House, Ready for President's Signature
WASHINGTON , D.C. - The U.S. House of Representatives overwhelmingly passed legislation authored by 21st Century Competitiveness Subcommittee Chairman Howard P. "Buck" McKeon (R-CA) to expand access to technology for individuals with disabilities. The bill, the Assistive Technology Act of 2004 (H.R. 4278), is now headed to President Bush for his signature.
"This bill shifts the focus of the program to provide greater benefit to individuals with disabilities. Our goal is to help states get more assistive technology directly into the hands of individuals with disabilities," said McKeon. "I know this will help states continue to make progress in their efforts to expand access to assistive technology, and that increasing numbers of individuals with disabilities will be able to participate in society more fully everyday."
The bipartisan bill, approved last week by the U.S. Senate, will strengthen assistive technology programs by refocusing resources to provide more direct aid to individuals with disabilities. By requiring states to spend the majority of their assistive technology grants on activities that directly benefit individuals with disabilities, the Assistive Technology Act of 2004 will help guarantee individuals will have greater access to assistive technology. The bill encourages states to invest in the programs that have been shown the most effective in providing assistive technology devices.
Rep. John Boehner (R-OH), chairman of the Education & the Workforce Committee, praised the bill's reforms. "This bill is a milestone for Americans with disabilities who depend on assistive technology to improve their quality of life," said Boehner. "By devoting fewer resources to building bureaucracy, this bill will expand access to needed technology for Americans of all ages living with disabilities."
A summary of the Assistive Technology Act of 2004 can be accessed at: http://edworkforce.house.gov/issues/108th/education/at/billsummary.htm 


Book on "Parenting Your Complex Child" needs support to get published
I am the adoptive parent of a 21 year old man with major complexities including, but not limited to Down's Syndrome, bipolar, ADHD, Autism (in dispute), & Down Syndrome related Dementia. He is one of the children the professionals refer to as "one of the most complicated cases I have ever worked with".
I wrote a book presently titled, Parenting Your Complex Child, which has been circulating to publishers through a literary agent for about a year. Presently there is an editor interested in it. However, her concern is that because I do not have an MSW, MD or PhD it makes it more difficult to sell. I am looking for professionals and others who would be willing to review the concepts presented in the book and basically verify to publishers that this is helpful and needed materials.
At the encouragement of my literary agent I created a website http://www.parentingyourcomplexchild.com which has some of my materials.
If you know of anyone who might be able to help with endorsing my work I'd appreciate that information. Contact me at 503/873-4432 or peggy@lighthouseparents.com
Sincerely, Peggy Lou Morgan


Upcoming PLUK trainings and activities planned for 2004-05
PLUK associate boards around the state are sponsoring a number of trainings and activities this coming year. Mark your calendar if you are interested in participating.
Go to http://www.pluk.org/training  for more detailed information and registration.

Statewide Interactive Videoconferences

Other Training Activities

Other Community Activities


PLUK eNews is published by:

Parent's, Let's Unite for Kids - PLUK
516 N 32nd St
Billings MT 59101-6003
800-222-7585; 406-255-0540; 406-255-0523 (fax)
plukinfo@pluk.org 
http://www.pluk.org 

Edited by: Roger Holt rholt@pluk.org 
Proofed & condensed by: Elisabeth Mills scribe@pluk.org 

Mission Statement: Parent's Let's Unite for Kids unites parents, professionals, families and friends of children with special needs to support one another, and share information for the benefit of their children.

Vision Statement: Given information and support, individuals with disabilities and their families will feel empowered to advocate for themselves and participate fully in educational and community opportunities.

Statement on accessibility: Today, we endeavor to be conscious of the need for making all electronic information accessible, as we are aware of physical accessibility issues in our community. For design guidelines visit http://ncam.wgbh.org/cdrom/guideline/

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